The 3CF PPI Team
Here at 3CF, our research and service delivery philosophy has always focused on the patients and their families that we care for, and we are proud to have been involved in many research projects over the years that have impacted the CF community locally, nationally, and internationally. Many of you have participated in these studies and your involvement has been critical, and we are very grateful to you and all your inputs and time.
In keeping with this philosophy, we are thrilled to be joined by a team of people with CF and their family (The 3CF PPI Team) who contribute to research and service delivery.
What is Public Patient Involvement (PPI)?
Public Patient Involvement (PPI) can be described as research or work carried out “with” or “by” members of the public rather than “about” or “for” them. We are looking to put together a panel of People with CF (PwCF) and/or family members of PwCF who attend our unit (can be siblings, children, parents, and partners), who will support the design and implementation of future research studies and/or clinical care services in a manner that is representative of all PwCF.
How is this different from being in a study?
If you were to join our panel, you would not be a “participant” completing surveys, or interviews, or providing samples. Instead, you would be a “contributor” whereby you would meet with the research and medical team to discuss different parts of a research study, for example: research ideas or questions, or how to write a consent form in language and terms that make sense, or looking at understanding what the results mean to the CF community, or sharing results with the CF community.
More Information:
You can learn more about PPI at UCCs website by clicking here.
